SHARING SOME NICK NEWS

By the time you read this Nick will have completed his transfer of bone marrow - we pray pray pray that this is what it takes to place Nick into remission.


He has gone through so much to get to this stage......read on parts of the recent update from Sandie.

Hi all

Today is day -3 and Nick has already undergone two days of chemo, he experienced some light headiness after each lot of chemo managing this with bed rest. It it hard for him to just lay about but thanks to a great game (as described by Nick!) he has stayed relatively immobile.

He had his first Total Body Irradiation treatment today, this will occur 2 x daily for the next 3 days. The treatment itself doesn't take very long but the setting up takes about 20 minutes and he must remain in a static stable and rather uncomfortable position for the duration. One redeeming thing is that he can watch a DVD during this time.

When he returned to the room he was feeling very hot, but had been advised that this would be a result. After a period of time he wisely decided to get back into bed, then felt cold, so I covered him up and he has been snoozing ever since. We had been advised that he would be very tired and that it is best for him to sleep as much as he can - so he is doing just that. I suspect that the continual TBI 2 x daily will take it's toll.

He still continues to harass the nursing staff with many of them threatening to quit:) Fortunately they give as much as they get and have certainly got his number! They remain diligent and full of information and answers if/when we have any concerns or questions.

I can't tell how much we have appreciated your ongoing encouragement, contact and support during this journey, we know we have a few more bumps ahead of us but knowing that there are so many people putting their positive wishes and energy out to us gives us strength.

much love to you all and please keep in touch as we need you all

Nick Sandie and Sophalina xxxxxxxxxx